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#FactFriday: For many individuals with #cysticfibrosis, frequent and lengthy hospital stays are part of life.
On average, people with #CF spend nearly two weeks per year hospitalized due to pulmonary exacerbations. For those in the final 10% unable to benefit from current mutation-targeted therapies, that amount of time is even greater. That's time away from work. From family. From living life to its fullest. For us here at EE, the urgency is real-and the need to speed lifesaving breakthroughs has never been greater. Share to help raise awareness this #CFAwarenessMonth as w
CF Vests Worldwide
1 min read
Facebook Memory – September 28, 2024 ⭐Emily's Entourage CF Clinical Trial Connect is the only database of its kind designed to connect people with #cysticfibrosis who are unable to benefit from
CFTR modulators to clinical trial opportunities. This includes people with #CF who have: - Ineligible genetic mutations - Side...
CF Vests Worldwide
1 min read
Facebook Memory – October 25, 2021 Yesterday, CF Vests Worldwide received its first monetary donation from someone in Russia. Donation of Cystic Fibrosis Vests.
See also attached past CF Vests Worldwide Facebook posts.
CF Vests Worldwide
1 min read
Cystic Fibrosis Vests Worldwide is thrilled to partner with Emily's Entourage to support the launch of the CF Clinical Trial Connect (CTC)
See attached past CF Vests Worldwide posts.
CF Vests Worldwide
1 min read
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